|RECENT IDEA/OPINION/QUESTION EXCHANGES:
As of July 23, 1999
EX: My mother has been on Gemcitabine and has recently experienced a
reduction of hearing in one ear. Is this related to the cancer?
EX: Can anyone offer any input why, even after resection, survival rate
periods are only between 6-18 months for pancreatic cancer patients?
EX: I have recently completed chemotherapy and am told that things are
looking well. I do feel depleted, can anyone give any advice about vitamins
or nutrition to perk myself up?
EX: My mother had a Whipple resection. She is experiencing indigestion
and diarrhea problems. Any suggestions?
EX: My father has been diagnosed with pancreatic cancer and I am frustrated
that there is little information out there. Johns Hopkins has a good site
and I just happened upon your site. It is frustrating that a centralized
base of information is not available. Any suggestions you can give me on
where the majority of information available is out there?
There are also numerous web sites on pancreatic cancer available, unfortunately, there is not a lot of cross-linking due to a number of factors. This web site has tried to publicize web sites from a multi-disciplinary approach. I have added three sites this month and am open to adding many more. It would be nice to see people and agencies working together but corporate funding, personal philosophies and professional liability appear to prohibit this from happening. That is why it is important for those who have accessed this site to give input so that others accessing it can get additional information that will help them in obtaining the best possible care and advice.
I recently asked a large medical institute in my city of residence to add this site to their directory of cancer support sites and agencies. They refused, due to their perception of personal web sites having subjective information or a litany of personal health complaints and negative editorializing that could psychologically influence one's personal perception of their health status or care. I've had people report to me that they have tried to link up their sites with other larger sites but due to conflicts of interest, these linkages are rarely seen to completion, thus less available information to the public.
I am impressed with the amount of information available at each one of the links you will see on this web site. Many of these sites were utilized by my family during my father's illness. I feel that many of these sites offered both conventional and "assumed" unconventional approaches. In the literature posted, there are some really informative books. Many of these I have read and regard quite highly. I do not want to personally endorse any particular book, program, medical center, or therapy. I hold beliefs and give credence to a number of different health approaches. Some have been rejected by my colleagues as "bunk" and others feel that they hold some validity within certain contexts. It is up to you to read the information available and form your own opinion based on what is stated and how it relates to your given situation and your personal philosophy. I can only state that it comes down to the access of information. I will close by borrowing from two adages, those being, "Knowledge is Power" and from the AIDS community, "Silence = Death".
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Site created 07/03/1999
Last updated 03/08/2002